Catching up- Friday night

It's Monday already? So where do I begin? Let's start with finishing up stuff from Friday.

Went to the oncologist. He feels it's not the Traceva that is causing the kidney problems. So, Dave's back on Traceva. I asked our friend Julie to come along to the appointment since the office had said "no" to homecare drawing lab. We discussed IV fluids and lab work via homecare and got the okay. I also had to point out my frustration with communication. Long story short, the MD got a little defensive but said they would try better. We got fluids at home....I'm happy and will no longer try to be quiet. Dave did stay for IV fluids there since there was no way to get at home that quickly. I had him stay in the car while I got to a couple errands.....new socks for Dave that I can help with better and a couple other things that will fit him. He's down to 185 lbs. He was still quite confused, so I ran in and out very quickly. By the time we got home, Dave was beat. I let him nap and we had a late dinner...well I did.

Saturday night we had a fire out front. The neighbors came over for awhile and I cooked a steak on the fire. Dave had some... Saturday night was kinda hard for Dave. He forgot to use the urinal and walked to the bathroom. I went to find him and he needed help to walk back, we only got to the bed in the living room and he was exhausted. I suggested he sleep there. I went back to the bedroom... I don't think that will work. About 6 am I heard some pounding and Dave was hitting the wall to get my attention. I did hear it....but how long was he pounding? He needed help getting up. The up and down during the night is keeping us both a little tired.

Sunday Dave got up and had his coffee and morning medications. He rested in the living room and had some Cream of Wheat. About 5 pm Tim and Joni came over. It was sweatshirt weather for sure, but we sat out on the porch. Joni and I went to get pizza for us before we went to the beach. The big sunset event....well, Dave didn't really want to go. We got there and could see a little sliver of red sky. I have to say even though we didn't see the sunset and clouds and sky were pretty amazing. We all sat in a semi-circle- I have a great picture. Dave could hardly walk back to the car after about an hour. When we got home Tim got him in the wheel chair. He sat in the living room while Tim, Joni and I ran after Nancy-boy. Not only did Nan get out, he ran under the cars. Finally got him in ...it was really only about 15 minutes and then helped Dave on to the living room bed. Next Tim and Joni helped me put blocks under the bed frame to raise it. That was pretty hard work.....who wants a king sized bed? I guess I'll keep it for now. I let Dave sleep until 11:30, got him up for his evening medications and he walked to the bed room.

Today Dave seems a little less confused. Home care came to start his IV fluids. It still runs for 2 hours and then I flushed it. Dave's napping before Scott comes by and then Tim and Joni are bringing dinner. Hope to have a fire for awhile...perfect night for that. Dave gets a brain MRI on Thursday. I'm trying to keep up with work and Dave. Some days are harder than others, I think I'll need to take a leave soon....just don't know when.

Pictures coming....honest.

peace, love, groove