Dave's last lung radiation treatment was today. We met with the nurses and MD when he was done. The plan is to check a lung CT scan in 4 to 6 weeks to see the results. We discussed the remaining brain tumors and he felt we should look at what further treatment would give Dave. Having gone though 2 major radiation treatments, he said Dave needs to recover and get back to doing the things he loves first. We will go back in 3 to 4 weeks to see how Dave's doing and when it makes sense to get another brain MRI (I liked that idea). Dave is still dizzy at times and not eating well. He's lost 15 lbs since starting lung radiation. While this is common, they want him to stop losing. I loved what the MD said to that......Dave's rehab job is to eat, even if it's work and he doesn't like it, and to start doing things so he can get his strength back. Of course Dave asked "when will my appetite and taste come back". Unfortunately the answer is- no one knows.
Lee's plan:
Give Dave lots of different foods to try and see if anything tastes good.
Move the new electric piano close to the bedroom so Dave can start playing some again.
Encourage him to walk outside 3 times a day.
He'll continue fluid infusions 3x/week at least until oncologist appointment next week. I'll start my plan tonight and tomorrow.
Peace, Love, Groove
New electric piano, and losing 15 pounds, sound like a dream job. A spouse encouraging a musician to practice, wow that should be on CNN. I lost my taste for three months and got down to my high school weight. How about a picture of Dave playing the electric piano! You can walk to a healthier you! Hope to see you this weekend.
ReplyDeleteI posted something, then suddenly it disappeared! Weird...anyway, what I said was that back when I was really skinny, the hardest thing in the world to do was to try to eat with no appetite, when nothing tasted good. I SO know how that feels...
ReplyDeleteI also want to tell you that things are a little hectic these days, so if you don't hear from me please don't think I've forgotten or that I don't care. I think of you guys every single day, without fail. I'm so glad you have so many people who are there for you on a daily basis....I know if I lived there I'd be among them.
Sending, as always, positive, STRENGTHENING vibes....keep plugging Dave!
Love, Mimi
Thanks John amd Mimi. I'm so glad you're here to understand Dave's struggle with food. We know your there friends!
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